I want to thank Laurie for letting me a
Guest Blogger today. I wanted to
tell you about a website my husband and I have started
www.Szumski-Says.com
It is hard to reinvent yourself when
you’re not a POP-STAR.
Hi my name is Michelle. I have
been diagnosed with adult onset Muscular Dystrophy (LGMD). Five
years ago (ok maybe 6) I was a single mother of 2 teenagers when I started
having trouble getting up from a chair or going up stairs. I thought, “I
need to get off my booty and start working out.” Which is exactly what I
did. As I was working out, I was breaking down muscle tissue in my core
muscle group (stomach, back, hips, hamstrings, shoulders) as everyone does
during a workout. Unfortunately, LGMD inhibited the muscles from
repairing. I thought the same thing you are thinking, “Oh man, that SUCKS.”
So, I went from a very active person
using her two legs and all her major muscle groups to a very active person that
uses a fancy powered wheelchair (insert snarky face here). The transition
has not always been smooth and those close to me know it isn’t quite complete
yet (sigh). Just when I think I have come to terms with the “new” me, I
am confronted by something else (who knew you couldn’t get off a Cruise Ship at
most Port of Calls if you are in a powered wheelchair, they really should put
that in the brochure, Grrrrrr).
My husband, Jim (more on him later) and
I started this blog in hopes of sharing information, tricks and tips,
information, humor, recipes, research and even Bow Chicka Bow Wow strategies
(wink, wink) that have worked for us or we have heard works for others.
While we are not experts, we will be sharing information we wish we could
have found. The process has not been easy and it doesn’t seem to
end. We hope to become friends with the folks who read our blog and hope
you share your journey with us. We hope to create an area where others
can go to learn about dealing with an acquired disability or adjusting to
disease or aging. We want to share information on new technology,
travel, or offer encouragement. All are welcome, whether you are
interested in this blog for yourself, a family member, or a friend. We
all know someone in transition.
This is our JOURNEY. It is not a
dress rehearsal. The time to LIVE and LOVE is NOW. Thank you for being
part of it. Please visit us at www.szumski-says.com
and leave us a comment!!
oxox,
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