Friday, 28 December 2012

The Most Precious Gift

She's losing her words. I called this morning to check in. When I asked her what she was doing she replied "wiping things". "What things" I asked. After a pause I could sense her frustration. Awkwardly she replied "the big black thing in the kitchen."
Over the course of the last year, I've watched her change and fade away. Initially, I enjoyed the change. The woman who was cruel and hateful was soft and sweet.  Instead of constantly demeaning me, she wanted into my life. Everyday she will call and ask "do you need any help today". In truth, her "help" is often a hindrance. Prior to Alzheimer's cruel hand grabbing hold of her mind, she was immaculate. Now she will forget to wash the dishes or the laundry with soap. As "helping" is now so important to her I will trail her with a watchful eye.
She was rarely patient or kind with me. I had to leave the home that I grew up in to escape the cruelty that was my childhood. Now the tables have turned. Although my body is weak, my mind is strong. I too could be cruel and dismissive in her time of need, but I can't. Time is now short. I am unable to erase the pain of the past, but I can now build a relationship with this stranger who is my mother.
The holiday season was never much of a holiday for me. There was always stinging words, stress and hurt feelings. Last year we did what any sane and financially secure individual would do, we flew to Mexico on Christmas.
This year was different. Tim had pointed out all of the changes that are taking place in mom. Its hard to say, but this is likely as good as she ever will be. 
Because of this, we opted to hold Christmas dinner one last time.  As opposed to the stress cooking a huge meal puts on Tim, we decided to cheat and have it catered. This decision was scorned by my sister.
Our relationship has become increasingly tense and complex. I always feel as though I have to justify myself to her.  Over the last year I have experienced a dramatic decline in my strength and function.  Sadly, this has left me unable to work and unable to participate in my previously packed social schedule. Instead of concern, she meets me with scorn if I am unable to go over to her place or go for dinner. Christmas Eve resulted in an argument and hurt feelings. She invited me to join her and our parents that evening for takeout Chinese food.  As I have to rely on Tim to help me start my day before he goes to work, I must rise everyday at the ungodly hour of 3:30 am. 
Instead of accepting my explanation, she simply told me she is not interested in how I am doing and she only asks so I don't get mad. 
Initially I was angered by her reaction.  "How dare she treat me like this?". "Doesn't she realize how difficult this last year has been?" I then remembered someone who I used to know who also had spinal muscular atrophy. She went through a period of time where she experienced a dramatic decline. Instead of showing the compassion that I should have, I was dismissive of her difficulties. I always thought that she was awash in self-pity and simply didn't try enough. Behind this was fear. Fear that this could happen to me. Fear that I was looking at my own future. She is no longer wish us and I wish that I possessed the maturity at the time to face my fear. This is why I am no longer angry at my sister, perhaps she too is afraid.
Despite the difficulty that the holidays bring to me, this year I received a precious gift. I received the gift of reflection and compassion towards others. Somehow I received the insight to look beyond what is in front of me to see what is inside others. For that I am grateful.


1 comment:

  1. Good for you Laurie. Sometimes it is difficult when those around us are overly critical. It is hard to have compassion and caring when others are not. HUGS.

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